Advance Care Planning Research

April 16 is National Health Care Decisions Day. It was created to emphasize the importance of advance care planning. To learn more go to

Several USF School of Aging Studies faculty members study advance care planning and end-of-life care. Here is some of their research on the critical issues in advance care planning.

 “Sharing End-of-Life Care Preferences with Family Members: Who Has the Discussion and Who Does Not” (2018) explores the attitudes of older adults toward talking to family members about the care they would want if they were incapacitated and could not communicate for themselves.

“The Association Between Assisted Living Direct Care Worker End-of-Life Training and Hospice Use Patterns” (2018) found evidence that training staff in end-of-life care has the potential to improve resident access to hospice care.

“Awareness and Completion of Advance Directives in Older Korean-American Adults” (2105) examined factors associated with advance directive completion, finding older Korean-Americans who were more acculturated were more likely to be aware of and to complete advance directives.

“Racial Disparities in Receipt of Hospice Services Among Nursing Home Residents” (2015) examined MDS (Minimum Data Set) records concerning advance care planning and hospice use. It found that compared to White nursing home residents, those who were Black, Hispanic, or Asian who received hospice services were less likely to have advance directives. However, all racial/ethnic groups were more likely to be hospitalized while on hospice, regardless of whether they had documented a preference for no hospitalization.

“Hospice Use and Public Expenditures in the End of Life in Assisted Living Residents in a Florida Medicaid Waiver Program” (2013) found that for residents in assisted living on Medicaid and Medicare, hospice use at the end of life was not associated with lower public expenditures.

“Religiosity and Death Attitudes and Engagement of Advance Care Planning Among Chronically Ill Older Adults” (2012) found that greater religiosity was associated with advance care planning discussions with doctors and a lesser fear of death was associated with living will completion."

“"Peace with my Maker": Voices of Seriously Ill African American Elders Regarding Advance Care Planning“ (2011) used the poetic expressions of African American elders to explore previously unexpressed attitudes toward advance care planning.